Holding an Umbrella

I brought Calvin in to see his asthma Specialist last week, because I thought I had finally broke the code to managing the monster. All I needed was the green light to move forward with the new and improved treatment plan. The simple thought was to remove the drug Singulair, add Zyrtec, and replace Flovent with Advair. Simple right? No, I am not that lucky.  

Now why would I want to take him off Singulair, the only drug that stops the body from having an allergic or triggered asthmatic response? The drug that prevents mucus from clogging the head and the chest. The drug that is better than your regular antihistamine. I won't bore you with the scientific details, you can google it. Just know that it's a drug in a class of its own, very effective in treating allergies AND asthma. BUT this unique drug comes with a known side effect. It can cause aggression and behavior problems, which is something we've seen in Calvin and have suspected Singulair to be the dark passenger. We had done a trial of our own when Calvin was four, without the doctors approval for two reasons. The drug was expensive (no generic at that time) and we wanted to see if his behavior would improve. It did. We had three excellent months until he got pneumonia, and then we were blamed because we'd taken him off of Singulair without approval. Breathing is more important than behavior. Understood. However, he's in first grade now and aggression doesn't fly in school. Since Calvin has actually been in a somewhat stable place for the last six weeks, experimenting again is an option. I'm just going about it the right way this time. 

Now for the maintenance steroid inhalers. Swapping out the Flovent for Advair seems like a no brainer because the drug is seriously a magic potion. When Calvin inhales this, it's as if he doesn't even have asthma. He is six years old, so he can and has taken it during a respiratory illness, so why not on a regular basis? I'll get to that in a second. First, what makes Advair better than Flovent? What it comes down to is higher concentration, so it's a stronger dose of steroids. Two puffs of Flovent is equivalent to one puff of Advair, with the addition of another drug (the secret ingredient), which is what makes it magical unlike the Flovent. Now when Calvin is sick, he's taking three to four puffs of Flovent, so it only makes sense to switch to Advair anyways. Not so. Apparently this drug is for adults, it's an adult dose. In children, it has been known to cause stunted growth. This has already been a concern for us. Calvin has been in the 10-30th percentile for height and weight, since he was a baby. He hasn't ever hit average. A child struggling with a chronic disease cannot grow properly because all their energy is being used to stay alive, not grow. If you find the right balance of meds and stabilize their condition, that child will be able to grow. However, if you overmedicate, the steroids will prevent growth and cause a host of other problems. 

My green light was NOT simple after all, it would bring the high potential for ugly consequences. It feels so much like a bad game. I'm trying to win but my crappy cards are making that difficult. Yet I refuse to lose, so how do I cheat this monster? There is nothing simple about changing around meds. If I make the wrong move, I could easily hurt my child, if I don't move at all, I hurt him too. Any way I choose, I feel screwed because that is what chronic diseases do, they screw with your life. We're stuck with making tough decisions. Should we try it for a couple months and should it work then what? We'll risk him being shorter and having the complications that come along with being on a higher dose of steroids? Or do we go back to the behavior problems and more frequent/dangerous respiratory illnesses?

I want to cry and I can't. I'm too angry, hurt and overwhelmed to cry. I want to fight this beast for good. Everyone keeps saying, he'll grow out of it. I've heard this for so long and it's just a faint hope inside me. It should happen, I hope like crazy it will happen but for now, for now it's scary and it hurts like Hell. This could all blow up in our faces. If he gets ill and doesn't pull through it well enough, then we have to put him back on Singulair. So, I guess we just wait and some of the answers will make themselves known. I hate waiting and wondering. Either way this goes we're stuck with the consequences and I don't know that there is a lesser of two evils to be found. It's easier when the choices are taken away from you, going out on a limb to experiment is much harder. Especially when you're playing with the breath your child takes. 

Here's the worst part of all this, he's becoming more aware of what's going on. The things being said and he's afraid. Who wouldn't be? Now I have a whole other challenge to deal with. I need to be calm, to keep him calm. I need to be strong but I'm barely keeping the fear at bay myself. While the Specialist and I were talking, Calvin interrupted with a frightful voice, about to burst into tears. He was panicking over the big words the doctor was using like "chronic diseases." Recently, Calvin has become very afraid of death because he knows people have died from complications of asthma. I grabbed him and put my arms around him, all the while biting the inside of my cheek to stop myself from losing it. I reassured him, he's going to be fine, we're here, trying to make him better. I haven't let him die and I don't plan on letting asthma win. I know those words are scary but the Specialist and I are taking good care of you. Calming your child when you feel like a bomb is about to explode inside yourself, is next to impossible. But as hard as it is, you have to make it happen even if that means biting your cheek so badly it bleeds. Later on when you've locked yourself in your bedroom alone, you can shove your face in a pillow and have a good scream. You do not let your child see or hear your fear. You don't get to be selfish with their chronic disease. You have to be strong for them.

I need to clarify something. Past entries may seem like I'm disappointed with the doctors. Sure there have been frustrations and disappointments but they aren't perfect, and they can't be, especially when they're dealing with imperfect chronic diseases. I feel so much love towards Calvin's Specialist because he's stood by us all these years and gotten us through the worst. He knows us, he cares and he's there 24/7 with his cell phone. He's the hero in our story, saving my child over and over again and complimenting me on several occasions for knowing my stuff. He has said I'm an honorary asthma specialist. Hearing a doctor tell you, you're doing a good job, is a huge relief. As a mother you stress practically every second about what you could be doing better for your child. Give them a chronic disease and the mother feels like a failure. 

To sum this all up, we've decided to put my plan into action for up to three months. We wait and we decide as the pieces fall. Calvin has finally been in a good place since mid-January, so this is a perfect time to play around with the treatment plan. In the meantime I'm trying to deal with the uncertainty, the risks to my decisions. This is not my forte, I like to be in precise control. I hardly let my guard down, I rarely enjoy our kind of normal because I've forgotten how to. Someday that will come back, but right now I'm haunted by the scares we've had in the past. When you've tried your hardest only to watch things fall apart in an instant... It takes a long time and maybe never, to recover from that terrifying feeling. So, it's hard for me to actually enjoy when the sun is shining in our world. Instead, I stand like a fool holding an umbrella in the sunshine, waiting for the rain. The rain that could be months away. This is my struggle and all struggles come to an end at some point. I am hoping for a happy ending, one in which he grows up strong physically as well as emotionally, from all he's had to go through as a kid. We deserve that happy ending. Only then, will I fold up my umbrella.

Our Invisible Child

This day marks a hard anniversary for our family. Nine years ago, on the ninth of January, our first child was born and our first child died. This year is proving to be a more difficult one. Maybe because it would have been her golden birthday, or maybe because it's just difficult. 

Lucy. We named her Lucy. Some days I accept her death and others I don't. The days go by as if nothing happened but something very big happened to us. I was twenty weeks pregnant when my amniotic fluid began leaking. They told us we had to deliver and they told us she would die. I could have the choice of holding onto her until my body naturally let go but that wasn't a guarantee. The longer the amniotic fluid leaked into my body, the higher the risk of septic infection and death for me. However I decided to continue, the doctors told us the baby would not survive. Without enough amniotic fluid, she could not develop lungs, so even though her little heart was beating inside me, she would not live. Labor was induced and it took three painful days for my body to let go. She had a heartbeat right up to the very end, I could hardly bare it. I felt like I was killing her. I would have rather died with her, if it weren't for Brett.  

That first night in the hospital, I couldn't sleep. The shock of the news was too much. Exhaustion had found Brett and he had drifted off to sleep in the cot next to my hospital bed, leaving me to my ugly thoughts. I remember how I couldn't stand being in that bed anymore. I had gotten up and went to the bathroom for lack of anything better to do with my time. On the way back to the bed I saw the rocking chair sitting by the window. The overwhelming thought hit me, the awful realization that I'd never get to rock my baby, never. I stood there and stared at it. Then I finally decided I was going to rock her, I was going to rock my baby. So, I sat in that rocking chair for a long time, with my hands on my belly. I held her as I rocked and cried. I didn't want to stop because I knew this would be it, she'd be gone and I'd have nothing to hold. But exhaustion finally took over and I found myself crawling into Brett's cot to spend that night. Just the three us together on a tiny cot, before they induced labor, before she was gone.

Years later these details are still with me and my initial fear of forgetting them won't happen, because it cannot. It's impossible to forget how it had just been Christmas and we had gotten all these cute little things for our baby. Only to watch Brett, a couple weeks later, packing these things away and crying so hard his shoulders shook. They would never get to be her things. Then, how could I forget the way he held her after she was born. He had ever so softly bounced her up and down, but quickly stopped and this very sad look took hold of his face. 

We'd entered into a depth of sadness so profound we were connected. Yes, there were sad family members and friends around us but it wasn't the same sadness. It wasn't THEIR baby, THEIR life. In moments of grief deep as this, you only find solace with those who have been in your shoes. They're shoes no one wants to wear but sadly some of us have to. You can see how an event such as this would not give you the luxury of fading away with the years. Truth be told, you don't want them to fade because it is all you got to have of your child. There was a time I wished it away, I wanted to forget but it's impossible. There is a very sad movie called "Rabbit Hole," where the grandmother explains how the grief never goes away. She says it's like a brick you carry around in your pocket. Sometimes you forget it's there but then you reach in, pat it and say "oh yeah, that." No matter what, you always feel the weight of that brick. 

We feel her absence. There are moments where you're looking in the rearview mirror and you want to see three little faces. There should've been three little faces. You catch yourself, unknowingly at first, keeping an eye on the children that were born around her birthday. You quietly look from the outside and watch them grow, all the while imagining what you should've had. You dream up your invisible daughter. We imagine her with blonde hair and blue eyes, like our Calvin. We know Lucy had Brett's chin, his nose and my lips. We know she wasn't meant to live but it doesn't stop your heart from wanting her here, from wanting to love her. 

I don't write this for your sympathy. I don't want your sympathy. You cannot console me and I don't need that. I write this for me and my love for Lucy. I write this for those who've gone through this kind of loss. I write this to acknowledge her, to remember her. 

I find comfort knowing Lucy's in the arms of the angels and my soul accepts that. But my human arms are human, they remain empty and it hurts. We wake up in the morning without that child in our home. We feel the absence and we selfishly want that child with us. I've found that I can write about her, talk about her with select family and friends and it's okay. I love saying or hearing her name. We find ourselves doing small things to remember her, like wearing pink. We wear a lot of pink, because that's the color of the blanket we held her in, for the first and only time. It's a way to quietly remember our invisible child.

We find ourselves missing her, we find ourselves thinking about what she'd be like. She has become our invisible child. Non-existent to most everyone else but she's with us always. Ariauna and Calvin know her story and we talk about her. She is apart of our lives in an invisible way. Surviving her death gave us strength. It showed us the fragility of life and the miracle of birth. 

On January 9th 2004, Lucy was born and died. Almost exactly a year later on January 7th 2005, Ariauna was born but there was a much different ending to that story. It was actually the beginning of a story. I can't think of a better way to spend that first and very difficult anniversary than to be holding a healthy and very much alive baby girl. It wasn't Lucy, it wouldn't replace Lucy but it was Lucy's sister. It was a wonderful feeling to hold Ariauna in my arms, bittersweet but wonderful. 

Because of Lucy's death, we cherish our children. Brett and I know what we lost and we're better parents for it, better people. There's a great sadness, but out of that came a great kind of love.

Connecting through Yoga

Yoga has been a passion of mine for a very long time. It all started in my teenhood with a purchase from Target. I bought a SHAPE magazine which had an article on yoga and a how-to for Salute to the Sun. After that I was hooked on this new thing they were calling yoga. I hadn't known of its existence because it wasn't something one normally did or knew about when growing up in the sticks, during the early nineties. 

I fell in love with it for a couple of reasons. I felt energized, strong, and calm in my body and mind. I didn't feel depleted or exhausted after a workout, I felt the opposite. Bending my body into poses was very cool and fun. I liked that all I needed was myself and some space on the floor. The Yoga mat and pants came later when I could afford them. I needed the books, tapes and practice first, then it was on.

When I became a mom, yoga was lost for awhile but as the kids got a bit older I found time for it again. There was guilt though, that mom guilt where you think you should be doing something else for someone else, anyone else except yourself. However, one day that guilt faded as my daughter showed up in the exercise room wearing a pair of her leggings with a tank top. She smiled at me and asked if she could do yoga too, if I would teach her. I had never thought to even try this, but I was thrilled thinking "hey this is it, I found our girl thing and I don't have to feel guilty, I'm not such a horrible mom." You see my boy Calvin has dominated much of my attention, the asthma is one huge aspect but he's also the baby, a chatterbox and wild. So, when she walked into that room all dressed in her makeshift yoga gear, I felt happy. Now we do yoga together. I can teach her how to be flexible, strong, energized and calm; not just for her body but for her mind as well. Something she can use for the rest of her life. Something I'll do right by her. 

As a parent, you're pretty much always looking at your flaws and wondering how you're damaging your child. I can't remember when I actually felt like a good mom. I often feel crummy about my mom skills because I could always do better. You get one shot with your kids, you don't get to retake the course and there are no manuals for it either. Sure people have ideas and they've written books or articles on how to raise your child but when you break it down, what works for one child may be harmful to the next. Every human being is different in some way or another. 

Our job as parents is to figure out who our child is, what they need from us and teach them in ways they'll actually learn. We have to get to know them, and complicating all this is life. Our day to day lives are filled with chaos. When I finally lay down for the night, my mind replays the day and most of it sucked. The days are consumed with the regular tasks of dishes, laundry, groceries, bills... but then it's also filled with cutting their ever growing fingernails, wiping butts, digging out a booger, bandaging a wound, changing pee sheets, cleaning the food off the floor and cursing as you step on a tiny toy soldier. How much good time do you actually get with your child every day? The answer is very little. There are small moments throughout the day I desperately grab for and try to hold onto them as long as I can. I do let the cleaning go more than I used to, because time doesn't stop and soon it's gone. I always give them an extra hug, several kisses on their soft cheeks, tell them they're my favorite people in the whole world. I tell them I love them so much that I can't even say how much it is, because it's just to much. But I still feel inadequate. 

Then I remind myself of this article a friend of mine shared on her Facebook page that brought clarity and contentment to my ever fretting mom brain. It was in the Huffington Post, called The 'Good Enough' Mother. If you're constantly feeling that inadequacy as a parent, this article will open your eyes and lift that suffocating weight off your chest. This weight I speak of, was especially heaviest for my daughter. Not only does she get put aside for her brother, she is also so much like me that we can clash and argue. Now I can breathe a sigh of relief and count on my time with her, connecting through Yoga. I've done something right, something good for her. Whatever it may be, find that connection with your child, no perfection allowed and good enough is all you have to be. A wise therapist once told me, "love them fiercely and be good enough, not perfect but good enough. 

This photo here, shows I'm doing just that. Look how happy my daughter is. These are the moments parents live for. They are few and far between but as long as there are some, then we're doing alright. We are good enough. 

Five Little Pumpkins Craft

Art projects and/or crafts are fun. Decorating with them is even more fun, especially in the Fall. However, with a budget, it's not always easy so I came up with a five little pumpkins craft that is cheap, simple and fun. If you have children, they'll love this. It doesn't take long so they won't lose interest and what child doesn't love painting? Now, if you're a coffee drinker and you do in fact have children, then you should have all the things you'll need for this craft already in your home. 

YOU WILL NEED

Coffee Filters, Glass of Water, Paint Brush, Watercolor Paint, Green Thread, Scissors and Cotton Balls.

INSTRUCTIONS

1. Take a coffee filter and crumple it up, so it's all wrinkly. Then smooth it out into a big circle. 
2. Use anywhere between one and five cotton balls. If you want a big pumpkin use five, a baby pumpkin use one. Place the cotton ball(s) in the middle of the coffee filter. Pull the sides of the coffee filter up and over the cotton balls, cinch together and twist. 
3. Take your green thread and cut about a foot off. Use one end of the thread to securely tie the top of your pumpkin together. Leave enough coffee filter for the stem of your pumpkin. If you're making baby pumpkins, then you'll need to trim the excess but always leave enough for a nice stem on your pumpkin.
4. Now comes the paint, the fun part. I love using watercolor on coffee filters because it only takes a tiny bit of water and paint to bleed throughout the paper giving it a really cool look. Don't use too much water though, or the cotton balls will get heavy and rip through the filter. 
5. Once painted, hang to dry. With that long piece of green thread you cut, make a knotted loop at the other end, so you can hang them up. I have mine hanging from my chandelier in the dining room. Now you could opt to add goggly eyes or paint/marker on jack-o-lantern faces to your pumpkins. I didn't because I want to keep them up for Thanksgiving as well.

For my children, I have always tried to do a five little pumpkins theme because since they were babies I've sang them the song. My version may be a little different than some out there but it's close enough... 

There were five little pumpkins sitting on a gate. 

The first one said, "Oh my, it's getting late."

The second one said, "There are witches in the air!" 

The third one said, "Ah, we don't care."

The fourth one said, "Let's run, let's run!"

The fifth one said, "It's Halloween fun!"

And OOOOOOOOH went the wind, 

And OUT went the lights, 

And the five little pumpkins rolled right out of sight.

If you're serious about singing this to children, you gotta do it right and not hold anything back. Be sure to get very animated, like holding up five fingers, then one, two and so on... Sound scared when you say "There are witches in the air!" Shrug your shoulders when you say "Ah, we don't care." Pretend scared again and fake run with your arms like Jim Carrey does in Dumb and Dumber. Get excited because it's Halloween Fun! Clap your hands together loudly when you say "OUT" or be close to a light switch and turn the lights off. I think you get the point and you're probably thinking I'm a little lame, but it can be a really fun song. It's something I have loved since I was little and still makes me excited for Halloween. My kids seem to love it too. So, there you have it. Enjoy and have fun!

The Monster Stirs

Another sleepless night. I've had more of these than I care to think about. It begins with one little cough and the monster stirs. 

I hear it. I hear that cough. My stomach turns, my heart stops and fear invades my mind. Calvin has a virus. The coughing fits began while he was trying to fall asleep last night. We started the cool mist humidifier and Vicks Vaporized his chest. Propped him up on pillows and hoped for the best... which at this stage in the game, is quite frankly, stupid. We've dealt with this monster for six years now. Hoping for an easy virus when your child has asthma is like hoping poop won't smell. In those six years, sure we've had some milder colds but none so mild as that of a normal child. 

Ariauna was angry this morning when she found out her brother would be staying home from school because he's sick. She knows what's coming and doesn't like it any more than the rest of us do. There will be no playing at the park after school for a couple of weeks, the fun times will be limited. She knows Calvin will get a lot of attention and herself very little. I get the question again, "why does he get sick all the time?" I explain it again, while trying to comfort her. I hate what this monster does to him, to her, to our family. 

We all know what an illness will do and we feebly hope it will take two weeks instead of three. I hope for four hours of sleep at a time instead of one or two. I hope for no steroids, no barfing, no pneumonia, no hospital. I beat myself up asking, how did this happen, what did we miss, what did we do wrong, what can we do better? How much it disrupts our life makes me angry. I want normal. I want fair. 

Most people are fooled by Calvin's appearance. He can seem so normal, healthy and just fine. But you don't know what goes on behind the scenes to make this happen. You are also unaware of what occurs when he does crash, when the monster is awakened because our family will disappear into our home for weeks on end. A so-called bubble is formed and we're very careful. We fight to get the monster stable. Once that's done, then we spend time giving his body a chance to recover before we throw him back in the cesspool of germs, or he's bound to catch another virus immediately. 

I have turned into someone I don't like. Panic, anger, sadness and frustration set in all too quickly. I have become the hand washing nazi and a germaphobe. If we're out and about, and I see someone with the sniffles, hear them cough or hear that they are ill with something, I feel the rage welling up inside me as I take Calvin and run.

Normal families are rarely bothered by an illness. Their normal child will get a virus, it will run it's course with minor symptoms and will not last for weeks on end. They think nothing of bringing their sniffling child anywhere and why should they. To them, it's a runny nose but to me it's a looming threat of pneumonia. Few can relate, even the closest of family has a hard time grasping the severity of something so small as a runny nose. Not even when I describe to them in detail just how awful an illness with Calvin can be. I don't think it's mentally possible for other people to fully understand until they themselves have a child struggling with asthma. We are all too often alone and isolated with this monster. 

Sometimes it gets the better of me and I foolishly wonder how different our life would be if my child had a set of normal lungs. Simple play dates, birthday parties, school, church, any kind of outing would be what it's supposed to be, normal and/or fun. Instead I look for potential hazards and curse a slip of an unwashed finger in the mouth. I have to keep strict rules, like no sharing drinks or food. Wash, wash and wash your hands. Keep your fingers away from your mucous membranes, the eyes, nose and mouth. Is it fair they should have to care so much about germs, about their mucous membranes?

I used to think that I had to be especially careful during flu season but during a recent visit with Calvin's Specialist it dawned on me there is no such thing. The Specialist was saying how we're not going to try wean him off any meds because flu season is upon us. I told him I don't believe in that anymore. I think it shocked him a little. I said it doesn't matter what time of year it is, if you check the charts Calvin has been sick with serious illnesses Winter, Spring, Summer and Fall. The flu season (October-April) has not applied to my child. I also wanted to blurt out my lack of hope for ever weaning him to a lower dose of meds. Why? We've tried this many times, only to find that we can't. Dosages have only ever been increased. But I refrained from showing just how much faith I have lost in them (them being doctors). 

Asthma is a monster. We've had to adjust our lives around it and live with it. Taking every step we can to manage and control this unstable creature. We sedate it with medication, but every so often, the bad fairies (the germs) sneak in and wake the monster with powers of an ugly kind. So, our battle continues. We keep trying new things and do the best we can, hoping one day this monster will leave. Puberty is now the new age, in which the doctors think Calvin will outgrow this. It used to be age five, but that has passed us by. I long for the day I can think of "normal" as a gift to be cherished. 

The Bike Trail and Man Boobies

Over the weekend Brett and I decided it was time to try our kids on a longer bike ride. We packed a lunch, loaded up the bikes and drove to the local trails (it’s not safe or easy biking to the actual trails so please don’t judge us for driving there). The trails are really nice and mostly wooded. By that I mean, it's as close to the woods as you can get in the Chicagoland. We'd been wanting to take the kids for some time and finally took the chance. 

It started out fairly smooth and fun. Perfect weather and the Fall air smelled lovely. The woods were pretty. I liked the sound of the tires crunching the fallen leaves, and I liked how there were leaves swirling through the air falling on and around us as we rode down the trail. Brett had taken the lead, he usually does, while I prefer to be at the back of the pack ensuring my chicks are safely accounted for. Typical mom behavior. I was doing good but could feel my annoyance creeping up because the trails were busier than I expected. I’m not one for swarms of people particularly when I have to keep track of my kids.

These people on the trail were of all kinds and types. You've got the rollerbladers, whose legs are all over the place making it treacherous to pass them. Then we have the super athletic, get out of my way or die, kind of people. They whiz past you screaming, “left” or dinging their bells obnoxiously as if I’m not going to hear it, or maybe they’re just really excited to ring that special bell of theirs. Next you have us, parents taking their children out for a ride. Giving them some fresh air and exercise. Finally, you have the slow people, either elderly or the ones dreamily strollin’ along. Whether they are on foot or bike, it makes for jam ups. 

About five miles down, we stopped for a picnic on some fallen trees. Up to this point there really weren’t too many mishaps, but I began to unravel as we headed back. The populated trails were really starting to get to me. The kids were tired, especially Calvin’s little legs. Brett and Ariauna were leading our pack again and seemed completely oblivious that Calvin and I were having difficulty keeping up. 

Then we came upon this older gentleman barely pedaling followed by a younger guy keeping pace behind him and messing around with his iPhone or iPod. Bit of a traffic jam. Eventually, Ariauna and Brett saw an opportunity to pass and did so. Calvin and I tried to pass as well but couldn't as we were being passed by a couple who'd come up from behind us. Then when we finally get another chance, it takes Calvin forever because of course his legs are tired. Next thing I see this older man flying down the path coming right at us. However, I didn't completely panic because I figured we were still good as we were right on the yellow line giving this oncoming rider enough room to get past. BUT this jerk of a man who couldn’t be bothered to slow down in the slightest felt the need to screech at the top of his lungs, “STAY ON YOUR DAMN SIDE” followed by what sounded like angry moaning and growling. I wanted to scream at him, "I’ve got a kid with me jerkwad, have some consideration." If I had a large stick I would’ve knocked him off that bike. At least I fantasized about that afterward. Must he be going so bloody fast and would it have killed him to slow down for a child?

After the screeching, Brett and Ariauna finally noticed Calvin and I were a good distance  behind. This only made me angrier, to be unnoticed and left in the dust. Then it happened. I hit my wall. This is where I go into melt down mode, lose all positivity, just want to get my kids home and out of harms way. I get furious with pretty much everything around me. There were too many people, too much variation in their speed and they're on different equipment. My kid almost got ran over by a maniac and I could no longer tolerate the chaos. I hated all the people on the path. I could hear the cars, planes and trains. The scenic bike trail turned into a stupid attempt to bring nature into the city. Everything was turning sour and why did I ever think it was a good idea to bring the children here.

So, when I had thought all was lost, my sweet husband managed to fix my malfunction. If it weren’t for him I fear I’d become an anxious and cranky old hag. When he sees me fall apart he always finds a way to make me laugh, relax and take a deep breath. This time he said, “Hey how about that guy with the boobs. Those were some man boobies!” We had seen a couple of old men on the trail who were shirtless, and one guy in particular had these spectacular breasticles. Then we were laughing and things weren't so bad. 

It’s a challenge taking your children anywhere. They themselves can be difficult because they are in fact children. The world around them can be treacherous and perhaps the worst part of it all, can be me. If I feel their safety is in any way threatened I become an irrational, angry and crazed mama bear. Thankfully there's a papa bear who knows how to handle this mama.

As for the children, they learned a few things from all this... stay in your lane, listen for people coming up behind you. Pass only when you’re absolutely sure you can and do it quickly. Look out for that oncoming “I ride my bike super fast and wear a racing shirt” kind of person. They will run you over and possibly kill you, should you get in their way. And above all, mom will lose her cool if you give her reason to fear for your life. 

Then there's my lesson... Losen up, let go, calm down and laugh more often, especially when there are man boobies involved.  

Cup of Coffee for my Asthmatic Child

This morning I woke up to find that my six year old boy had gotten the coffee ready for us (him and me). He didn't fly solo though, he took instructions from his dad and followed them to a T. He measured and poured the water, scooped four tablespoons of grounds into the fresh filter and had it all ready so all I had to do was flip the switch when I came downstairs. My sweet boy hadn't done that yet because he wanted to wait for me. 

He started drinking coffee around age two. Calm yourself... It is only half a cup, once a day and has hazelnut or french vanilla liquid creamer added to it. How it all started, you ask? One morning way back when, he wanted a sip of what his mommy was drinking. I gave him some and he wanted more. While most people would have said "NO," I said "sure!" 

I had heard that coffee can be beneficial to anyone with asthma and that children under the age of twelve can experience an opposite effect to caffeine and Benadryl. How caffeine effects him is hard to say. I wouldn't say he is any more wild because of it. On the other hand, we have noticed that when we've given him Benadryl, which knocks me out cold, he becomes absurdly hyper. But that's a topic for another time. Anyway, you can see I had given the caffeine and coffee quite a bit of thought before he ever asked and I agreed. 

I did some further research on caffeine before I let coffee become our little ritual and as it turns out, coffee is indeed good for the airways. It can never replace a prescribed maintenance medication but it can give a little extra help for the lungs, especially when asthmatic symptoms flare-up. LIVESTRONG had a good article describing the beneficial effects of caffeine on asthmatics.

Now, Calvin was diagnosed with asthma at the tiny age of five months old and he has earned the status of “SEVERE” asthma on his medical file. There is nothing regular about his case and never has been. I knew in the early stages of his infancy there was something not quite right about his breathing. He would grunt a lot, choked on milk at almost every feeding and he wouldn’t take a pacifier or his thumb. He slept best at an incline on my chest or in his vibrating seat. He was constantly getting colds that would turn into pneumonia, turning into hospitalizations. Getting a doctor to listen was next to impossible, that is until he almost died from a bad case of pneumonia. 

Being a parent to a child with asthma is more than hard. The fact that I found something to make it a tiny bit easier is magic. I share a cup of coffee with my boy almost every morning. It's our special time, our thing, just my baby boy and me. It smells good, tastes good, it's warm and helps him without being an expensive-toxic-chemically-enhanced pill, a cumbersome breathing machine, or inhaler. In fact our favorite place to go together, our happy place, is Caribou Coffee. This isn't normal, I am fully aware of that. I would never dream of giving my healthy daughter coffee. However, our life has never been nor will ever be "normal" when asthma is star of the show. 

Ultimately, Calvin loves coffee and I know it benefits his condition. I will gladly supplement my child’s asthma regiment with coffee any day than have to use the rescue meds more frequently. Some people shake their head at me but I shake my head back. To these people I say... you don't know me or my child, or what we’ve gone through. You haven’t been there when harsher forms of treatment are used. When I’ve had to watch every limb of my child’s body shake. When I’ve had to try and tame the wild beast on an ADHD+PMS like roller-coaster, who used to be my sweet child. When I’ve held him helplessly in my arms and felt his heart pounding so fast it seemed as if it were going to explode. Then dealing with the aftermath of using a systemic steroid, seeing how it weakens the immune system so for months out he is sick with illness after illness. 

What I have described are the side effects of using rescue meds like Albuterol and Orapred (systemic steroid). Yes I use them when I have to and I’m grateful for them, BUT only when they are absolutely necessary. If I can get away with managing his asthma on a low dose of Flovent (an inhaled steroid maintenance medication), a dose of Singulair and some coffee, well then, I consider us lucky. 

If you take anything away from this post, it should be... When you have an asthmatic child, giving them a small cup of flavored coffee is a treat, as well as a treatment. People argue that caffeine is harmful to children. I argue that the drugs, the steroids in particular are of much greater harm than a little caffeine could ever be.